Well my yippee was premature, after my visit to oncology I came away with another 5 weeks of steroids, it appears my haemolytic process is not under control, hence the steroids.
I did point out how unwell I feel, his response was that I looked well, this caused Jane and I some amusement. I reminded him of a statement that he made years ago, that having CLL was like driving with the handbrake on whilst normal people wizz  about normally, I said at the moment I think someone has stolen my wheels.
I have an appointment with the respiratory consultant Monday hopefully we will know more.