Monday, 4 April 2011

When we returned from Taunton on Sunday the post from Saturday was on the floor with two appointments for The Royal United Hospital.
Tuesday the 12th for a meeting with nurses team and pharmacist to collect drugs for chemotherapy,so that I can start them the next day. And then back in at 9am the next day for the intravenous side of the treatment.

I am really struggling, I am so tired, I get short of breath just doing nothing, the effort involved in doing nothing is horrendous. I am hoping that this treatment is the answer, from reading the literature and looking on the web it could be not nice, still needs must.
I asked my consultant why I feel like this all the time, he says with my cell count being so high and the anemia its a double effect, I think that's why the chemo is taking place so quick.
I was looking for information on FCR chemotherapy on Internet and came across this blog, there were some interesting opinions on it, its never a good idea to look these things up on the Internet, but the reason I mention this was a young woman had posted that she had been diagnosed with a cancer and she had been being treated for a while, funded by her insurers who now had decided to stop funding her treatment as they think it was pre exsisting, poor woman was in a terrible state, fortunately she was getting a lot of useful advice.
I bought a coffee machine last week, it arrived today, Jane spent an hour setting it up and I heard these sounds from the kitchen, I thought I was in Costa coffee, 5 minutes later a latte was placed in my hand, money well spent.
I do meet a lot of people who are having a lot harder time than me, we should be spending more money on research into some of the terrible illnesses like cancer, Alzheimer's and others,the excuse that there is no money does not wear with me as we are able to find money to go to war, a cruise missile costs £500,000 each.

give blood please
love
Philip


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